Some things just don't make sense...

Actually lots of things don't make sense but the one I am thinking about right now is the fact that there are 2 Wordeman children that have been snuggled on the couch watching TV since 7:21 AM. On a Saturday. Do you know the DAILY struggle John and I have on school days to drag them out of bed? I can't stop thinking " WHA? HOW? WHY?" See, not only cancer is mysterious. #shakinghead

So, back to Thursday. What a day. A very long yet productive day. Thankfully, my brain MRI came back, well, with just a brain. No sign of cancer. My EKG was fine and while my neck is sore from the biopsy, the procedure went very well and I have had much less bruising and swelling than the first time waaaay back in April 2014. Many things to thank God for!

Dr. M... what can I say, I just really like and trust her. I honestly believe that I am in the best place for treatment with her and her team. They are all just fantastic. The funny thing about my trusting and liking Dr. M is more because of her stories of her husband and children that are so similar to mine. Her humor and just a true...for lack of a better word, goodness about her. She did tell us last Thursday, that she is happy how strong I am and that I need to let her do the worrying about me right now. She said that when it is time for me to worry, she will tell me. It might sound silly, but when you are grasping at anything, hearing that is a good thing.

My new clinical trial starts Tuesday. I would like to start out by saying it is... high maintenance. There are many times I need to be in Indy. Some are going to require over night stays. Many day trips. While slightly frustrating and stressful, it just needs to be done. I am not going to say no to something that has the possibility of prolonging my life. Here is the schedule as we know it. Trust me, I could still have this wrong. Melissa and I went over it in detail last week and even a couple of beers didn't make it any better. Since it is a Phase one trial (first stage to be used on humans) the side effects are not quite well known. since different people react differently etc. They do know that there is hair loss (Miss Judy if you are reading this, I need some warmer head gear! xoxo) joint pain, nausea (to be controlled with meds) really, the "usual."
Tuesday: start trial with labs and infusion. Then hours of "watching me" and many blood draws
This will be overnight stay #1 since I need to be back to IU in the morning for more and many blood draws on Wednesday.
Thursday: I am home
Friday: back to IU for a day of blood draws
Saturday: home
Sunday back to Indy for an overnight stay since I have yet another neck biopsy early Monday morning.
Monday: blood draws and biopsy
Day 15- I have no stinking clue without having my calendar in front of me what day this is but yes, back to IU for blood draws.
Day 21: round 2 of infusion
I will say, that all of this rigamaroar only happens on infusion one and four.
Whew... I feel selfish for asking for more prayers... but I am. Prayers for John and the children. Right now we are all a little on edge you might say. lol  Prayers that this trial will not only help me but others. I would hate to go through all of this and not have it benefit further information on maybe finding a cure or a better chemotherapy for other Triple Negative Cancer patients. Please pray for all of our wonderful friends and family that are yet again going to have to step up to the plate and help us again. As I have said before, we would be lost without all of you! Again selfishly, please pray for minimal side effects for me that I will remain "strong" as Dr. M says.

I am a little nervous to actually say that my phone is back in service (Thank you Doodles for my wonderful loaner!) I am sad to say that I have lost all of my texts from so many of you that I have to admit, read and re-read many, many times. So let's start again, shall we? 513-807-3611

Smooches, Kate