Goodness we need to catch up. I had my third dose of my clinical trial chemo last Wednesday. It was a week delayed due to how horrible I felt. I told John on Wednesday morning while we were getting ready, "I find it funny that I feel the best I have today than I have in 4 weeks and I get to go do it all over again." I don't know why I am surprised by how mentally taxing it is. Yet again, I love Dr. M but this time, I loved that she went above and beyond and also explained the reasoning for how I have been feeling.
She contacted the head of the Pharma company heading this CT and asked him if anyone had ever had such a reaction on this trial and was told no but on another trial for a different cancer, yes. He explained that with the anti-body combined with the chemo, when it binds to the cancer, it basically turns the cancer toxic - hence the horrible way I am feeling. The best thing about all of this? Its that after only 2 rounds of this chemo, I had a total 67% REDUCTION in all tumors!!!! Literally almost unheard of so far. Everyone, nurses, Dr. M, The Pharma guy- beyond excited. Please pray it keeps working. They did lower the dose slightly and while I haven't been feeling great, I know that it usually hits me in the second week. Henry's First Holy Communion is this Saturday and my sweet God-daughters Confirmation is Friday. Please pray for the best strength and good health I could possibly feel to celebrate with both of them.
Thank you so much for your continued prayers- there are not enough word of appreciation! Please keep them coming!
Smooches, Kate
Monday, April 27, 2015
Sunday, April 19, 2015
Recovery
Sorry I haven't updated. But to be very truthful, I have been sick- like really sick. Like scared friends,family and even myself sick. With my bloodwork low and high and all over the place and being so dehydrated, I just couldn't bounce back. I was released from the hospital on Monday and have honestly been in bed 90% of the time since. To say I had 0 energy is an understatement.it was just yesterday, that I woke up with a smidge of an idea that I would be out of bed for more than 10 minutes. I took Henry to his baseball game- such a gorgeous, sunny day. I met some new baseball moms that were so nice and the work that the dads do during these games? I am in awe. I'm looking forward to more fun games.
After his game though, I was toast.
Back to recovery... Right now, clearly my scheduled chemo was postponed last Wednesday. It is now scheduled for this Wednesday. Two days ago I would have thought no way but now I think I need the mindset to Just plow through. I asked for bloodwork last Friday and I was completely shocked when it came back not just normal but good!! WHA? Why then am I feeling just SO horrible?! Dr. S says she just really thinks I have had a good, long run of bouncing back and it's kind of caught up with me.
There are so many factors riding on the timing and my well being of this round of chemo. In my opinion, I have to plow ahead this Wednesday and also figure out some magical combination of strength and medicine to keep me as strong as possible. It scares me that this might be an impossible task. Henry is celebrating his First Holy Communion on May 2. My Goddaughter is celebrating her Confirmation on May 1 and I am her sponcer. There are parties to plan and food and fun! Oh you guys...I am worried- really worried. PLEASE pray for me! Please pray it.just.works.out. Pray for strength and patience. Pray for energy. Thank you SO much!
Smooches, Kate
After his game though, I was toast.
Back to recovery... Right now, clearly my scheduled chemo was postponed last Wednesday. It is now scheduled for this Wednesday. Two days ago I would have thought no way but now I think I need the mindset to Just plow through. I asked for bloodwork last Friday and I was completely shocked when it came back not just normal but good!! WHA? Why then am I feeling just SO horrible?! Dr. S says she just really thinks I have had a good, long run of bouncing back and it's kind of caught up with me.
There are so many factors riding on the timing and my well being of this round of chemo. In my opinion, I have to plow ahead this Wednesday and also figure out some magical combination of strength and medicine to keep me as strong as possible. It scares me that this might be an impossible task. Henry is celebrating his First Holy Communion on May 2. My Goddaughter is celebrating her Confirmation on May 1 and I am her sponcer. There are parties to plan and food and fun! Oh you guys...I am worried- really worried. PLEASE pray for me! Please pray it.just.works.out. Pray for strength and patience. Pray for energy. Thank you SO much!
Smooches, Kate
Saturday, April 11, 2015
Worst Spring Break Evah!
Hello from... Naples? No. Hilton Head? No. A really fun cabin in Hocking Hills with two great families? No.
Hello from the hospital for me.
I wanted this to be a more complete post but that will have to wait. Here is the low down...
Had blood work and CT scans last Wednesday and really was feeling yucky. Like having to lay down and not move yucky. Very nauseous and just exhausted. But I needed to pack for our mini spring break with the T family and the R family! Packing didn't happen that night. I just went to bed. Packed - if you can call it that in the morning and left for Hocking Hills feeling miserable but hoping that my blood work was on its way back up. Didn't happen. I spent Thursday in bed in HH. Friday, I ,are a very tearful call to the oncologist and John drove me all the way back to Cincinnati. It was horrible.
I was very dehydrated, had low potassium and a slew of other things going on. All as a result from my chemo two weeks ago. But the good news is that my scans are the best ever!!
So, here I am. I have slept most of the day and still don't feel super all the while I am so grateful for our friends and John for making sure the kids are having a memorable spring break.
Of course, prayers are asked for!
Smooches, Kate
Hello from the hospital for me.
I wanted this to be a more complete post but that will have to wait. Here is the low down...
Had blood work and CT scans last Wednesday and really was feeling yucky. Like having to lay down and not move yucky. Very nauseous and just exhausted. But I needed to pack for our mini spring break with the T family and the R family! Packing didn't happen that night. I just went to bed. Packed - if you can call it that in the morning and left for Hocking Hills feeling miserable but hoping that my blood work was on its way back up. Didn't happen. I spent Thursday in bed in HH. Friday, I ,are a very tearful call to the oncologist and John drove me all the way back to Cincinnati. It was horrible.
I was very dehydrated, had low potassium and a slew of other things going on. All as a result from my chemo two weeks ago. But the good news is that my scans are the best ever!!
So, here I am. I have slept most of the day and still don't feel super all the while I am so grateful for our friends and John for making sure the kids are having a memorable spring break.
Of course, prayers are asked for!
Smooches, Kate
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