Sunday, June 22, 2014

I would like one order of a clinical trial please...


So... Let's just jump right in...

My CT scan showed an increase in both mediastinal and supraclavicular tumors. The Carboplatin isn't working. Onto plan... D? I am enrolling in a clinical trial at IU. The required brain MRI and abdominal and pelvic CT happily showed nothing! All a blessing on many levels. I am still waiting to hear about the EKG but am hopeful that will be ok also. John and I are going to IU on Wednesday to see Dr. M, get the new chemo drug that is in pill form and ask a brazillion questions. People are asking if I am "ok" I really am. This is yet another bump in the road. As I said before, I will not stress out over something I have no control over. This is where Faith comes in-I have it and am just praying it keeps growing instead of the cancer!
Please pray this drug is "the" answer for me. Pray for little side effects. Pray for John and the children that they too have Faith that not only will this drug help keep the cancer from growing but that for right now, it really is just a bump in this road we are on together.







Thursday, June 19, 2014

Florida Fun, a curve ball and thankful Thursday...

We left for Longboat Key on the evening of Thursday June 5th. After driving through the night and most of the day Friday, I am completely convinced I am officially too old to drive anywhere through the night. It took a lot out of me. John is still convinced it is the way to go. The children were SO wonderful not only on our long car rides, but the entire time we were gone. I have yet to even download my hundreds of pictures to show you and am going to wait to tell you the entire story of our week until I do. But it was wonderful. Simply wonderful.

Yesterday was a scheduled chemo day in Indy. My sister in laws were my "peeps." One took me and the other took the kids...I'm not really sure who picked the short straw on that one. :)
Throughout this last week, I have been having that achy pain in my neck near my tumor sight that I had been having when the whole cancer part 2 started. I kept going back and forth on whether or not the tumor felt bigger or was the same. Dr. M felt that the tumor was the same but I did have swelling around and above it. Now, this could be from lugging kids and bags and carts to and from the beach and pool everyday. Or it could be from kayaking. Or it could be from the kayaking tour we took where a scary, ginormous storm came out of no where and we were paddling our brains out in waves,wind and rain to get out of the Sarasota bay and onto shore. (Total story coming on that one)
So... I am now waiting on another CT scan to be scheduled today or tomorrow to see if my instincts are correct and we need to move onto plan... Geez, what plan am I on? D?
While I was in Indy yesterday, in preparation of plan D, I did sign up for a clinical trial. One of its requirements is a brain MRI. Dr. Ms nurse was so nice and got me into the MRI while I was already there. So instead of chemo, I got to see if I even have a brain in my head! Results are still pending. :)

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Thankful Thursday....
I have SO many things to be thankful for...some are impossible to really put into words.

My favorite part of our trip probably was having John off work and with us for over a week. I am so happy he was able to relax and have fun with us. He works so hard for our family and many don't realize that even when he walks in the door at night, he is still talking many calls, putting out fires and preparing for the next day seven days a week.
I am so thankful for the Wellington foundation to gift us with this opportunity. Without it, we wouldn't have had the experience we did as a family. If you find yourself with some extra pocket change or an extra vacation home anywhere that you would be willing to give another family an experience like we had, PLEASE donate to them. I not only am very humbled by what they do, but have also made a wonderful friend in the process. (Hi Lisa!)
I am thankful for Dr. M... I have complete trust that she has my health and life in her best interest. She not only is sharp as a whip, but also believes in me and what I am feeling. For that I am unbelievably grateful.
I am so grateful to God right now. While this could be a either a major or minor bump in the road, I have complete trust and FAITH He is right next to me. We all may not like this bump in the road, but  I refuse to stress out or be angry at something I have no control over. I honestly believe God has my best interest at heart and while I may not like the outcome, I am choosing to trust and listen to Him.


More to come!

Smooches

Tuesday, June 3, 2014

Yusko Family prayers

It is with such a tearful, heavy heart that I ask you to pray for this wonderful family. Nora's Aunt and Uncle are very good friends of ours and I have learned so much from this faith filled family. The Yuskos have been incredible role models in Christ not only to myself, but to thousands of people. Please pray that they will still know and feel Gods immense love for them -especially now.

http://noraroseyusko.com



https://www.http://noraroseyusko.com.com/groups/231661623601433/?fref=nf